We went to Denver yesterday for another 7am procedure.. we live a couple hours away so have to leave town by about 5am for these things. Bad luck tho.. we found out when we got there her appointment was an hour later so we could have slept until 5 and left at 6.. HA! This was the last LP/methotrexate for the rest of the year (2 weeks). so we have a great Christmas break.
Starting on the 27th of December, Soph has to have labs drawn, and provided she passes her blood count requirements, she begins the next part of treatment on Dec 28th. They told us this next phase has potential to be REALLY rough on her..
as i have explained before, the LP’s (spinal taps) are a procedure where they draw out spinal fluid to make sure the cancer has not spread to her brain or spine. They replace the spinal fluid they take with a chemo called methotrexate.. well the next phase of treatment, she will be getting methotrexate in her veins. They will begin what they call an ‘escalating dose’, which means that at the beginning they give her a dosage and over the next 8 weeks that dose will keep increasing. This shit will have some nasty effects on her.. the usual nausea, vomiting, hair loss crap.. but this one is most likely going to give her terrible mouth lesions.. bloody, pussy soars in her mouth that will make her not able to eat or drink.. and they are very painful.. Basically, they will stop increasing the dosage when these soars start to get bad.. so in other words.. she gets pumped full of more and more of this stuff until her body cant handle it anymore.. then they keep giving it to her at that dosage..
so that is going to be pretty lame.. pretty lame indeed..
So far she has been on the lighter side of all the side effects that these drugs are suppose to cause, so i can only be hopeful that this is no different.. we shall see..
so that is that.. ill keep posting over the next 8 weeks and show the progress of this medication.. but i want to take a moment to talk about something else here..
Obviously, we all know about the tragedy in Connecticut yesterday.. First off, this is an awful ordeal.. My heart goes out to the families and friends of everyone effected.. That should be a given.. there is no reason a child should have their life taken, especially under a terrible and unnatural circumstance, as yesterday proved to be..
But i have been sort of upset about a few things surrounding the people who were NOT directly affected by this..
I dont have an opinion on guns and rights and health and all of that jazz.. well, i do, but im not going to push it out on to the world to show how different or similar i feel on such matters.. what DOES bother me is this, I have read so many posts and even had phone calls from family saying “hug your children tonight” .. really? tonight? Now, i am not saying that a situation such as this does not make me feel lucky and grateful that it was not MY child who suffered something like this.. but what i am saying is that i think it is even more tragic that it takes something terrible to make us realize how lucky we are.. whatever the subject. Like the husband who’s wife cheats on him and he realizes that he needs to have more time with her.. more dates and i love yous.. like the super storm in NY that wipes out electricity for months and now we are so happy to have heat in our homes.. There is NO reason that we should be thankful for our children last night.. we should be thankful for them EVERY night.. forever.
I hugged my kids every night before this.. I hugged them every night before the cancer, i hugged them every night because I love them. I hugged them every night because they are truly the only thing that matters in a crazy world full of things unknown.. and i will continue to hug them every night after this has blown over and we have all gone back to life as normal.
Be thankful for what you have everyday… for the rest of your life.